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“Idealists and capitalists”: ownership attitudes and preferences in genomic citizen science

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journal contribution
posted on 13.05.2022, 20:20 by Christi J. Guerrini, Jorge L. Contreras, Whitney Bash Brooks, Isabel Canfield, Meredith Trejo, Amy L. McGuire

The perspectives of genomic citizen scientists on ownership of research outputs are not well understood, yet they are useful for identifying alignment of participant expectations and project practices and can help guide efforts to develop innovative tools and strategies for managing ownership claims. Here, we report findings from 52 interviews conducted in 2018 and 2019 to understand genomic citizen science stakeholders’ conceptualizations of, experiences with, and preferences for ownership of research outputs. Interviewees identified four approaches for recognizing genomic citizen scientists’ ownership and related credit interests in research outputs: shared governance via commons models; fractional ownership of benefits; full and creative attribution; and offensive and defensive patenting. Interviewees also agreed that the model selected by any project should at least maximize access to research outputs and, as appropriate and to the extent possible, broadly distribute rights of control and entitlements to research benefits.

Funding

This research was supported by the National Human Genome Research Institute of the National Institutes of Health under Award Number K01 HG009355. The content is solely the responsibility of the authors and does not represent the official views of the National Institutes of Health, the authors’ employers, or any institutions with which they are or have been affiliated.

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